Sunday, July 8, 2012

Carsuns 1st surgery

Well who knew moving could change so much?!? Well we got PCS'd to Virginia Beach...transfered schools..transfered doctors... and WAM!!! Something may be wrong with your childs hips! Are you kidding?? He had been "frog" sitting for over a yr but know one ever said there may be issues. Carsuns femur didnt curve into the pelvis ...xrays showed the range of motion had "felt" normal because the pelvis had actually started forming around the straight femur. Lucky it was caught in time, Carsun is still young enough that the pelvic bones should be able to reform around the newly positioned femur.
The surgery was well far from normal! He was only supposed to be admitted for 4-5 days...8 days later we where finally released. Carsun had an epideral to control pain and it didnt work. After trying to control his pain for almost 48 hrs all 7..yes 7 powerful pain meds hit Carsun all at once. He was put on oxygen for 24 hrs and all pain meds stopped and switched. It was so scarey...he was barely there, couldnt wake up eat drink talk nothing! We where so worried didnt have a clue what could happen next. We went in with so much trust and felt so highly of the team Carsuns care was placed under and then this..We where not expecting anything so intense. Our hearts where breaking...Carsun was barely hanging on and we had a newborn, 1 yr old, and 6 yr old at home! Thankfully Carsun turned a quick corner when we requested pain meds to be stopped. within 24 hrs he was awake more and eatting. 12 hrs after that was transfered from the PICU and to the reg pedicatric ward, and not long after that he was released to go home. Recovery was hard...carsun had to heal and then learn to rehold weight on his legs. He still has a long road to go but hes a fighter!
Carsun has developed a new problem now that he can weight bare..his legs are crossing worse then before. He cant pull them apart from each other when he does step to be able to gain good strength. Xrays look fine so trying new equipment to try and see if positioning is the issue.
After 2 braces there has been no difference in Carsuns leg crossing. His plates from femur surgery need to be removed. After our move we are seeing a new doctor..something just isnt right with his legs and we just arent sure what else to do. :(

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