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| Right after cast came off! |
Carsun went to see Doctor Casey to have his cast removed yest! He was so excited! First thing they did was cut it off, and she made sure when she put it on it wasn't coming off easy either! 3 pieces later it was off and we taped it back together to bring home! I was a bit surprised that Doc Casey wanted him to stand right away but all in all at this point I trust her, and this surgery has been completely better then the last. We had already noticed with him sitting on the table that his feet weren't turning into each other so we knew that there had been some change for the better already. When she asked him to stand he didn't want to at first but we had promised him a trip to the pet store if he did really good, so we told him this was it the last thing he had to do to go to the pet store...with that he said OK and Dad stood him up and WOW!!!! Is all I could see, think, picture..ahh everything was just WOW! My son now almost 5yrs old stood for the first time EVER without anything on his feet to help him...he stood and his legs didn't cross! Dad told Carsun lets walk to Doc. Casey, lets show her you can do it...and he walked w daddy..WALKED without them ever touching or even crossing each other! AHHH I'm crying now lol...but really the joy in our hearts is just exploding! Now Carsun is OK with not walking, he loves his walker and his wheelchair and all the equipment he uses daily and we are happy that he is happy...but this ahh this will make moving in his walker 1000 times easier! This will make him being able to cruise easier...everything pretty much that has been one of his goals in school will be made easier just with the shear fact that his feet don't touch! Now we are NOT giving up on walking independently...we will never give up on that but we are, humm whats the right word, realistic that's it, realistic with what he is capable of right now. This is a HUGE GINORMOUS step forward for him that we do pray brings us to that ultimate goal of in dependency! We are just realistic for Carsun and we will continue to push him but not over push and expect more of him then he is capable of because ultimately he is a blessing weather his feet are always on the ground or if hes doing turns on wheels! It wont change how much of a blessing he is to us and everyone around him weather he continues this or not but most importantly we wont stop trying!
Many of you that have known Carsun since he was little and was diagnosed have watched him grow and know just how much of a turn around this is and understand our expectations for him. Some may not understand why we say we are fine with him using a walker or having a wheelchair...and its not that we so much want that for him, its that we have grown n understand the hard journey this is for him and don't think we wont make him try, because if anyone knows our family we try and try again,but if its not what he was put on this earth to do we aren't gonna make him...we would hurt him more then help him. So we stick with one day at a time, we do what they do at school and bring it home and try some more...we work hand n hand with therapy and that's the only way to success. One of the most important things Ive learned is success can not be pre-determined with kids like him, and can not be "textbook"...they make their own story, their own textbook to follow...and you take each goal as a moving forward and when its not completed in that year then we change it alil to best fit him. So please don't think we don't want him to walk because we do...we are just happy hes here, and that hes such a blessing to us, and when he walks with a walker its just as special as walking alone because some kids just need alil bling to help them get along, and to remind you and me that we are blessed in every way!
So for today, this week, and into next month as we celebrate him turning 5 yrs old...we will be filled with joy, his teachers will be filled with joy as they see him next wk a completely different child then they ever met, and our close family and friends as we celebrate his birthday with them...we will all be reminded of yesterday and the joy we all felt when we watched that video and we seen that smile on his face! We all want to just say thank you! Thank you for never giving up prayers, never walking away, and always being behind us in every way! We love you all...in everyones life there is a blessing...Carsun just happens to be a special one!
